Tanners Dad's Blog
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Autism Health Care Twitter Day #HHS December 23rd 2008 ALL DAY
- Posted on 12.19.08
Autism and Healthcare twitter day December 23rd all day #HHS
Tom Daschele invited Tanners Dad / Tim Welsh will be the Autism / Healthcare Community Discussion Host and Moderator. Sign onto twitter. Search for #HHS and post your comments
and answers to questions.
No prizes no games no tinsel Just a conversation for families fighting for children with Autism. Be There Tues Dec 23 ALL DAY Obama wants to know.
http://www.causecast.org/member/tanners-dad
The Presidential Transition Health Policy Team is encouraging Americans to host and attend Health Care Community Discussions across the country between December 15 and December 31. Autism Health Care Twitter day will be December 23rd ALL DAY because of the difficulties these families face in getting together. These Community Discussions are par of the President-elect's continuing efforts to reach out and directly involve the American people in their own government.
Health Care is a top priority for President-elect Obama, and he wants your help in designing a system that provides quality, affordable health care for all Americans. His nominee to be Secretary of Health and Human Services, Tom Daschle, is attending several Health Care Community Discussions. He and his Team will review the submissions from all of these gatherings. President-elect Obama wants to bring the voices and health care concerns of all Americans to Washington. On his behalf, Thank You for helping to make this happen on December 23rd for families dealing with Autism, promoting the day, and participating in this discussion.
We have three goals:
1. To discuss Autism and Health Care reform and draft a submission to the transition Health Policy Team.
2. To use a process to do this that in a way that respects and empowers attendees
3. To identify stories that exemplify the need for health care reform for the families dealing with Autism.
We will Respect everyone. We will listen (read) all comments. We will engage in a spirited discussion without being disagreeable. I am here to facilitate the process. I am not doing this to tell anyone what to do or offfer sugestions.
Related causes: Community, Environment, Health, Human Rights, Leaders
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Sen. Daschle,
Thank you for inviting us to this important discussion. The concerns over childhood autism extend beyond the basic questions of caring for and accommodating children with autism spectrum disorders. As you may be aware, a vocal and disruptive minority of parents, aided by Hollywood celebrities, are using the internet and the nation's news and entertainment media to link autism with scheduled pediatric vaccines. Let's be clear - there is no credible scientific evidence that associates one with the other. But this persistent myth is discouraging some parents from immunizing their children, and as a result we've seen measles outbreaks at rates not seen in over a decade. This is inexcusable.
We've also seen the emergence over the last ten years or more of an autism "cure" industry that preys on parents. Unproven treatments with little or no chance of success, such as chelation, hyperbaric oxygen therapy, and anti-viral drugs, are draining family resources, and sending a message that children with autism as toxic or "vaccine injured". Be very mindful of these ruses as you consider what kind of health coverage the government might provide to parents of children with autism. Health care fraud is an $80 billion a year racket, and the bad guys know about autism.
Thank you, and congratulations on your party's success in the fall elections. I very much look forward to a return of scientific inquiry free of stifling ideologies.
1. What does the Autism community perceive as the biggest problem with the health System?
2. How do families choose a Doctor or Hospital? How far do you have to travel for services? Where do families dealing with Autism get information in making health care decisions? How should public policy promote quality health care providers?
3. Have attendees or their family members experienced difficulty paying medical bills? How can policy makers address this problem?
4. In addition to employer-based coverage, would the group like the option to purchase a private plan through an insurance-exchange or a public plan like Medicare? Have you ever been denied service? Is there discriminatory practices in the Health Care industry now? Examples
5. Do families with members on the Autism Spectrum know how much they or their employer pays for health insurance? What should the employer's role be in a reformed health care system? How should pre-existing conditions be handled?
6.Are families familiar with the types of preventive services Americans dealing with Autism should recieve? Do you feel that our families have gotten the recommended prevention? If not, How can public Police help families who have members on the Autism spectrum?
7. How can public policy promote healthier lifestyles for families dealing with Autism?
Other Questions from twitter so far:
What supplements and Treatments should the Government advocate and support?
How is the current ecomomy and future impacting your Health Care decisions?
How are parents and Family members health impacted by a family member on the Autism Spectrum?
What is the biggest flaws in our current system that we must avoid in the new system?
Should Respite be part of public policy? What should a respite public program look like? How does the government overcome trust issues?
How do you know when to take a child on the non-verbal end of the spectrum to the doctors?
What should the Education systems role in health care be?
Should ABA therapy be available to everyone on a national level? Should the government be more involved with those that prey on Families dealing with Autism?
If you have experienced or are experiencing a different health care system in another country what works? What doesn't?
Should food and supplements be part of the healthcare program for people on the spectrum? Should their be better regulations on food labeling?
YOUR QUESTION NEXT.. Post to twitter #HHS now. We will pose it throughout the day